We are enjoying every smile, every word and every kiss Kelvin gives us! He is our angel and we love him so very much!! Today we went to the beach and had lunch. He sat in his chair and watched the birds eat crumbs off the floor and he giggled. I could smell the sea air and remember how much he loved riding the marry go round. We stood in front of it as it turned and listened to the music. I asked him if he remembered how much he loved riding it and he paused for a moment and smiled. I live for these moments! He looks so good and I continue to pray for a miracle! I feel so strong and in my heart I know that Kelvin will be all right. Tomorrow we will have some family over and I know he will enjoy this! God is good and He will take care of us, all of us! I have faith and pray that with each day my strength will grow and my faith as well.
Full of Faith & Hope
Mom & Dad
Friday, October 27, 2006
Thursday, October 26, 2006
Enjoying every minute!! Rocio Montagner
My little warrior continues to fight!! He says he is not ready to go to Heaven!! He sometimes starts to smile and talks about lots of funny things and well we are enjoying every minute!! He started telling a friend that he was a movie star and asked if they wanted his autograph!! I tell you he is amazing!! We continue to pray for a miracle!! We are begging God to please heal my little angel!! Its God that has kept him with us and we pray he continues to do so!! It is so heart breaking to see a child with cancer! Cancer is so unforgiving!! It does not care what color, faith, sex or age you are!! It invades babies to adults! We need to continue to lobby our governments to spend more money on this horrible monster!!
I have been reading books that have been sent to Kelvin. He loves Clifford and he especially loves a book we just got called "Why do you love me?" I have read it to him almost everyday! Sammy in the book is my Kelvin!! He takes Karate and swims and Kelvin loves to do this!! Sometimes when I am reading it to him he chants with me "Mommy will always love me no matter what!". I am so happy that he feels the love!!
I don't want to give up!! I know that if God chooses he will heal my son!! I pray and ask you all to pray and beg God to allow us to keep our little boy!!
I can honestly say that I will always love God no matter what!!
Full of LOVE & HOPE
Mom & DAD
I have been reading books that have been sent to Kelvin. He loves Clifford and he especially loves a book we just got called "Why do you love me?" I have read it to him almost everyday! Sammy in the book is my Kelvin!! He takes Karate and swims and Kelvin loves to do this!! Sometimes when I am reading it to him he chants with me "Mommy will always love me no matter what!". I am so happy that he feels the love!!
I don't want to give up!! I know that if God chooses he will heal my son!! I pray and ask you all to pray and beg God to allow us to keep our little boy!!
I can honestly say that I will always love God no matter what!!
Full of LOVE & HOPE
Mom & DAD
Saturday, October 21, 2006
Prayer Emergency-Rocio Montagner
Today was a tough day! Please I beg you all to pray for my Kelvin. Tomorrow is an important day, Kelvin's life depends on it! Please calling all prayers!! Pray hard, very hard!! Kelvin needs them!! We know that his brain is full of water! The shunt is not working and he is vomiting and very tired!! He sleeps and needs the water out!! Please pray that all the water comes out and my son will live!! God said be specific!! NO WATER IN THE BRAIN!!
Faith, we believe that God can save my son!
Full of Faith, Hope & LOVE!!
Mom & DAD
Faith, we believe that God can save my son!
Full of Faith, Hope & LOVE!!
Mom & DAD
Thursday, October 19, 2006
Prayers for Kelvin - From Miguel Flores (Kelvin's Uncle)
Hi Everyone,
We are asking everyone to pray for Kelvin as he is
going to a Oncology Dr. in Mexico that was willing to
take him in to evaluate him to see if there is
anything they can do.His appointment is at 10:30 this
morning.
Please keep him in your prayers.
Miguel A. Flores
We are asking everyone to pray for Kelvin as he is
going to a Oncology Dr. in Mexico that was willing to
take him in to evaluate him to see if there is
anything they can do.His appointment is at 10:30 this
morning.
Please keep him in your prayers.
Miguel A. Flores
Tuesday, October 17, 2006
Kelvin goes to Disneyland!! From Rocio Montagner
I am very happy to report that we got back today from Disneyland! Kelvin was so excited to go! I asked him if he wanted to go and he said "yes". So we called our friend Billy and he set it up for us. Kelvin has been very weak and quiet but yesterday there was magic! He watched the parade and he was clapping and dancing in his wheel chair. He also kept waving to the characters. This is what has kept me going knowing that my little boy is happy and is having fun! He loved all the rides especially the Buzz Light year. He was so excited about shooting Zurg. We went with his cousins and friends and everyone was so concerned making sure Kelvin was having a great time!! We had our tour guides who made the day extra special taking us to the front of the line so Kelvin did not have to wait! He felt so important and so special and well he is! As I watched my son laugh I could not stop the tears, I wanted to enjoy every moment but some where inside I kept thinking about how very ill my little angel is! He is so amazing, there is this horrible monster taking over his little head and he some how finds the strength to laugh and have fun! This morning we had brunch at Goofy's kitchen, there were Disney characters walking around and he got to take pictures with them and get their autographs! It was magical to see him so happy and excited! We went on this big limo that was filled with balloons! On our way home I must have cried the last 10 miles just thinking of the reality that awaited us. Kelvin is sick and continues to be sick. I remember telling moms at the hospital to be strong and have faith that their children would make it! Most of them did and now I sit here with the news on my child and all I can do is fall apart! I am grateful to God for allowing my little angel to enjoy himself, I am grateful for the smiles and the talks Kelvin and I have. I am grateful for having this day and praying for many more! I hear my family and friends telling me how sad they are about my baby. My pain is so great, I sometimes feel as though I can't go on. The only thing keeping me alive is the breath that comes from my little boy. I keep thinking how much Zachary needs me too but all I keep thinking is how will I survive if my Kelvin is gone? How will my heart beat if part of it is gone? How will I breath if Kelvin does not? I keep praying to awake from this nightmare only to realize that it is not and this is my life. If only we could find some sort of medicine that would heal my son, some cancer drug that gets discovered to save my son. I have watched him go through so much in these past months and I tell Frank "My baby has suffered needlessly" his response is that if he had not gotten the treatment we might not have had him today. I don't want to have any regrets but I sometimes wonder if what we did for him was the best thing for him.
Today I read a book about Heaven, Maria Shriver wrote it. He did not like the part about the grama going into a wooden box, but as the story went on he felt better and said he liked it. I wish there was a book about a child dyeing, maybe he would understand it better, maybe I could understand this!! Because I just can't seem to rationalize why kids dye of this horrible monster, cancer.
I pray for another day and another and many, many more to come. Hug your children, live life today because you just never know what tomorrow brings.
Praying for no regrets,
Mom & Dad
Today I read a book about Heaven, Maria Shriver wrote it. He did not like the part about the grama going into a wooden box, but as the story went on he felt better and said he liked it. I wish there was a book about a child dyeing, maybe he would understand it better, maybe I could understand this!! Because I just can't seem to rationalize why kids dye of this horrible monster, cancer.
I pray for another day and another and many, many more to come. Hug your children, live life today because you just never know what tomorrow brings.
Praying for no regrets,
Mom & Dad
Sunday, October 15, 2006
Saturday, October 14, 2006
Strength in numbers
It was a magnificent day! Kelvin has been is such good spirits!! He has also shown so much strength! He continues to be my little warrior. Today I saw him clasp his hands so very hard he said "God, we have to fight these monsters! We just have to beat them, PLEASE GOD" I looked at Frank and he looked at me and we were speechless. I sat by Kelvin's side and told him that he did not have to fight anymore, to leave all the fighting to God and if God chooses to beat the monsters Great, but if God feels that He needs him more than that would be all right with us, that we love him so much and that God loves him so much too and he would be all right and that we will soon all be together again. He said all right but I know my little soldier does not want to give up! He keeps telling people that he is going on the Disney Cruise soon, as soon as he is better. My little boy is my hero! I tell him that too! He has taught me so much! I am a better person because of him, he has taught me how to live!
Today wonderful people came to my home and lite candles for Kelvin and prayed! We felt so strong and so loved! Kelvin brings the goodness out in people and for this I am so very grateful! I also got many e-mails of support, people telling me that they too were lighting candles and praying for my angel. I know God is listening and that He will do what is best for my Kelvin! We don't want to be selfish, we want Kelvin not to suffer we just want him to be free of pain and to feel so loved!
Thank you again for all your prayers and all your support, we continue to pray for a miracle and we know that you are all doing the same. Cancer is strong and takes away life, God is stronger and a giver of life. We know that He can defeat it if he chooses. We pray He does.
Grateful and Hopeful,
MOM & DAD
Today wonderful people came to my home and lite candles for Kelvin and prayed! We felt so strong and so loved! Kelvin brings the goodness out in people and for this I am so very grateful! I also got many e-mails of support, people telling me that they too were lighting candles and praying for my angel. I know God is listening and that He will do what is best for my Kelvin! We don't want to be selfish, we want Kelvin not to suffer we just want him to be free of pain and to feel so loved!
Thank you again for all your prayers and all your support, we continue to pray for a miracle and we know that you are all doing the same. Cancer is strong and takes away life, God is stronger and a giver of life. We know that He can defeat it if he chooses. We pray He does.
Grateful and Hopeful,
MOM & DAD
Thursday, October 12, 2006
Candle Light Prayer
Tomorrow Friday at 7:00pm we would like you to please light a candle and pray for my Kelvin. Those of you who would like to stand outside our home are welcome. We will bring Kelvin to the window to show him how many people care and are praying for him. This would mean so much to him and our family. We believe in the power of prayer and the power of numbers so the more of us who are praying for my angel the better. I know God will be listening to our prayers.
Thank You all For your Support!!
Love Mom & Dad
Our Address is:
5736 Malaga Ct
Palmdale Ca. 93552
Thank You all For your Support!!
Love Mom & Dad
Our Address is:
5736 Malaga Ct
Palmdale Ca. 93552
Wednesday, October 11, 2006
Remembering - Rocio Montagner
It was a pretty good day for Kelvin today. He had some friends from CHLA visit today and they brought his favorite Porto's fruit tart. He had a big piece!! As I look at him smile and eat it feels like everything will be all right. I sometimes remember how he use to run down the street yelling "Daddy I love you!" as Frank left to work. Kelvin has always been very lovable always kissing us, hugging us and telling us how much he loves us. He continues to do this and I just want it to continue forever and ever. He has been eating very well and his color is so much better. He no longer has the dark circles under his eyes and his cheeks have a tint of pink. He is looking so much healthier. I know that our prayers are working he is smiling and laughing out loud like I asked God. We are hoping he continues to feel well enough so that we can finally take him to Disneyland. Today when our friends came over to visit he told one of them that he was going to a even better place, the Disney Cruise. My heart ached. I sometimes wonder if Kelvin feels that he is getting well and that going to the Disney Cruise is possible. I pray that he is right and that he will feel well enough to go. Right now we will see if we can take him to Disneyland. Kelvin says he feels strong and well but he does sleep often. He did stay awake allot longer today than he has. We continue to pray for a miracle, a miracle that will heal my little angel.
We would like to ask that you all join us in prayer to ask God to spare our little angel in a candle light prayer for him. We would like to have as many people as possible join us. Friday at 7:00pm light a candle and pray as hard as you can for our angel. Ask God to heal him ask God to keep him free of pain. We are praying for a miracle and I know that if we all join God will listen. He may not allow us to keep our son but I know that He will make sure that our baby is comfortable and without pain. We love him so much and just don't want to let go!
Filled with Love and Hope,
Mom & Dad
P.S. Please do not forget Friday Oct. 13 at 7:00pm to pray, Thank you!
We would like to ask that you all join us in prayer to ask God to spare our little angel in a candle light prayer for him. We would like to have as many people as possible join us. Friday at 7:00pm light a candle and pray as hard as you can for our angel. Ask God to heal him ask God to keep him free of pain. We are praying for a miracle and I know that if we all join God will listen. He may not allow us to keep our son but I know that He will make sure that our baby is comfortable and without pain. We love him so much and just don't want to let go!
Filled with Love and Hope,
Mom & Dad
P.S. Please do not forget Friday Oct. 13 at 7:00pm to pray, Thank you!
Monday, October 09, 2006
Watching Kelvin Live!
Everyday that goes by I praise God for giving us another day with our sweet angel. I lay beside him and watch him sleep and with every breath he takes I thank God. He is very tired and sleeps and I don't want him to feel any pain and just want him to be happy. This morning he woke up with a smile and just hugged and kissed me telling me "Mommy I love you" he kept telling me over and over. I felt such joy being able to hear these words and being able to hold him in my arms feeling his little lips touch my cheek. I capture every smile every laugh and just am amazed at what a beautiful child I have. He is so filled with LIFE and this is what I hold on to. I watch him LIVE and this is what keeps me going. We have had so many people come and visit and he enjoys this for a little while but he gets so tired. I continue to wish that all of these wonderful people would have been here before he was so ill so they could have enjoyed his energy and his wit! He is a funny little guy still saying funny little things that will stay with me forever. We continue to unite and pray for a miracle that will allow us to be blessed with our little child. I sometimes feel numb and don't want to think of anything except Kelvin LIVING! He is such and inspiration. He enjoys mommy reading the Bible and fold his little hands in front of him as he asks God to heal him. I know God is listening and I pray that he will grant this prayer to him to us. He was not able to enjoy the Big Christmas unavailing but we had our little Christmas together as he opened tons and tons of presents. He said to me "Mommy I want to give some of these presents to the kids at the hospital" I told him that we could do that, that we could send some of these to the other kids in the cancer floor. He is so full of compassion and is thinking of the other kids who suffer from this horrible monster, cancer. He is so full of love and he is so full of LIFE!
I sometimes think to myself and wonder what life would have been like without him. I sometimes think if what I know now I knew then. Would I have had him? Of course, the love I share for him is worth a thousands life times. If it is only for a few years that I am blessed with him it is so worth it! I am truly blessed and honored to be his mom! He has taught me and many others the true meaning of life! He has taught me about strength, love and unselfishness. Many of us did not know about childhood cancer until Kelvin. We are now aware and want to help. It is because of Kelvin that our eyes have been opened. I truly believe that he has impacted many, many lives and we are better people because of him. If it is Gods plan to allow him to LIVE, I pray that he continues to teach us how to value every moment and to never give up. He says that he needs to rest now, that he needs to sleep but while he can he will teach us to LIVE!
May God hear our prayers and may God performed a miracle! Please continue to gather the troops as we continue to battle this beast that we call cancer. Prayer is so powerful we just have to believe that he will be healed!
WATCHING KELVIN LIVE!!
MOM & DAD
P.S. I want to set a time that we can all light a candle and pray for Kelvin, to pray that God will listen. There is power in numbers and if we all pray at the same time God will have to consider our plea! I will get back to you on a time and date!
I sometimes think to myself and wonder what life would have been like without him. I sometimes think if what I know now I knew then. Would I have had him? Of course, the love I share for him is worth a thousands life times. If it is only for a few years that I am blessed with him it is so worth it! I am truly blessed and honored to be his mom! He has taught me and many others the true meaning of life! He has taught me about strength, love and unselfishness. Many of us did not know about childhood cancer until Kelvin. We are now aware and want to help. It is because of Kelvin that our eyes have been opened. I truly believe that he has impacted many, many lives and we are better people because of him. If it is Gods plan to allow him to LIVE, I pray that he continues to teach us how to value every moment and to never give up. He says that he needs to rest now, that he needs to sleep but while he can he will teach us to LIVE!
May God hear our prayers and may God performed a miracle! Please continue to gather the troops as we continue to battle this beast that we call cancer. Prayer is so powerful we just have to believe that he will be healed!
WATCHING KELVIN LIVE!!
MOM & DAD
P.S. I want to set a time that we can all light a candle and pray for Kelvin, to pray that God will listen. There is power in numbers and if we all pray at the same time God will have to consider our plea! I will get back to you on a time and date!
Saturday, October 07, 2006
Making Every Moment Count-Kelvin's Family
Yesterday was a wonderful day! Kelvin woke up and was hungry!! I was so excited and happy!! He had a good breakfast and a good lunch!! He looked so happy and he was acting like himself!! We were so happy and are so thankful for all your prayers! God is listening! I asked him to please allow my little angel to be happy and he did! Kelvin also had a special visitor SPIDERMAN! He could not believe that he had come to see him!! Kelvin talked to him and even tried not to expose his secret identity, he kept whispering that he knew he was Peter Parker and made sure no one else heard!
Today was suppose to be a magical day for Kelvin, Christmas. Some wonderful people from Access Hollywood came to decorate our home inside and out! It lookes beautiful, they even made it snow! We were so excited for Kelvin but just 1 hour before the big surprise Kelvin had a seizure. We were all so crushed! There was all this snow, Santa, and of course lots of presents and Kelvin was so ill! How could this happen? First Disneyland and now Christmas! I am grateful that he got to see Spiderman and he enjoyed it so much. I try not to be angry but I can honestly say that it makes me so sad.
At about11:30pm he woke up and we told him about Santa and the snow. We took him down stairs to see the tree and all the presents. He was excited but still very tired and weak. Frank carried him to the front door and we showed him the snow. I sure hope it is still there tomorrow so he can touch it.
It is so amazing how kind people have been to my little angel, Billy and all the wonderful staff who came to make this a magical time for my baby! He missed the snow fights but tomorrow I pray that he will be strong and happy so that he can enjoy opening all his gifts! He asked Santa for a Jeep he could ride on and before he fell asleep he asked "Did Santa forget my Jeep? I did not see it under the tree" Frank told him that Santa knew we had a 3 car garage and he parked it in there! He says he can't wait to ride in it tomorrow!! I pray he can!!
Praying for more good days,
Mom & DAD
P.S. Here is a photo with Spiderman
Today was suppose to be a magical day for Kelvin, Christmas. Some wonderful people from Access Hollywood came to decorate our home inside and out! It lookes beautiful, they even made it snow! We were so excited for Kelvin but just 1 hour before the big surprise Kelvin had a seizure. We were all so crushed! There was all this snow, Santa, and of course lots of presents and Kelvin was so ill! How could this happen? First Disneyland and now Christmas! I am grateful that he got to see Spiderman and he enjoyed it so much. I try not to be angry but I can honestly say that it makes me so sad.
At about11:30pm he woke up and we told him about Santa and the snow. We took him down stairs to see the tree and all the presents. He was excited but still very tired and weak. Frank carried him to the front door and we showed him the snow. I sure hope it is still there tomorrow so he can touch it.
It is so amazing how kind people have been to my little angel, Billy and all the wonderful staff who came to make this a magical time for my baby! He missed the snow fights but tomorrow I pray that he will be strong and happy so that he can enjoy opening all his gifts! He asked Santa for a Jeep he could ride on and before he fell asleep he asked "Did Santa forget my Jeep? I did not see it under the tree" Frank told him that Santa knew we had a 3 car garage and he parked it in there! He says he can't wait to ride in it tomorrow!! I pray he can!!
Praying for more good days,
Mom & DAD
P.S. Here is a photo with Spiderman

Thursday, October 05, 2006
Email Address and Kelvin's Photo
Update from Kelvin's mother: Many of you have asked for a picture of Kelvin so I like this one we took for his B-day party. This is how I want to remember him, HEALTHY AND HAPPY!!

Here are two photos of Kelvin Montagner, the one on the right is with Eva Longoria. You can email your thoughts, support and prayers to Rocio Montagner at: rociomontagner@sbcglobal.net. All of us here continue to pray for Kelvin and his family, and we know you are too. I apologize for the size of the photos, for some reason I couldn't get them to appear larger.


Here are two photos of Kelvin Montagner, the one on the right is with Eva Longoria. You can email your thoughts, support and prayers to Rocio Montagner at: rociomontagner@sbcglobal.net. All of us here continue to pray for Kelvin and his family, and we know you are too. I apologize for the size of the photos, for some reason I couldn't get them to appear larger.

Kelvin's First Communion
It has been a very difficult day, we have been surrounded by family all day doing what they can for us. Today my little angel received his first communion. As the priest blessed him I felt so happy knowing that he received this sacrament. I remember speaking to the priest at the hospital who told me if ever the time came he would take care of Kelvin's first communion. I always thought he would go through the classes march down the isle and receive it. As I sit here I continue to feel so very sad it just does not seem fair that Kelvin should have to go through all this.
Today I was looking through a notebook for a phone number of a friend to let her know what was happening and I found a page where Kelvin had doodled. He made a picture of his tummy and put a big spider on it. I remember when he drew this about 4 months ago telling me that he had pain and that the spider was inside hurting him. He also made a chart with faces on it, like the ones in the hospital showing his pain level. He drew a happy face first and then last a sad face telling me that he was very sad. I could not fight back the tears looking at this drawing and thinking how much my little angel has gone through all for nothing! Nothing but a loosing battle. I have been by his side most of the day watching and holding him. Today the Hospice nurses came and found that he had a very high heart rate. They gave us a suction machine to help with the discharge in his mouth, if he has another seizure, and gave him medicine to lower the heart rate and to help him if he is having a seizure. They were so very kind and gentle with him.
We are planning to have Christmas for him this Friday. Kelvin is so cute, every time I called attention to him I would say "Kelvin you have to behave don't forget that God is watching" he would respond yes mommy and so is Santa. All year he reminds me that Santa is watching and that he will be on his good list. So all I want for him is to have Christmas. Billy our friend is going to help with this be as magical as possible for my little angel. He will arrange for Santa to come to visit too!! I told him today "Honey I want to tell you that Christmas is here! We are going to decorate and have our Christmas on Friday" He smiled, I could see the joy in his eyes. Tomorrow we are suppose to have his hero visit, Spiderman! I can see that he is excited and we are hoping that he will be responsive to enjoy his visit!
We are praying that Kelvin remains happy and comfortable and that he can be awake and alert to see all the surprises we have for him! We are also praying that God will allow him to stay with us a little while longer so we can hold him and kiss him. I feel so much pain. I just don't know how I will be able to go on without him. I know I have my little Zacky but I just want to be selfish and have both of my little boys with me! God please grant us a miracle, cure my little angel. We beg you!
With a tearful heart,
Mom & DAD
Today I was looking through a notebook for a phone number of a friend to let her know what was happening and I found a page where Kelvin had doodled. He made a picture of his tummy and put a big spider on it. I remember when he drew this about 4 months ago telling me that he had pain and that the spider was inside hurting him. He also made a chart with faces on it, like the ones in the hospital showing his pain level. He drew a happy face first and then last a sad face telling me that he was very sad. I could not fight back the tears looking at this drawing and thinking how much my little angel has gone through all for nothing! Nothing but a loosing battle. I have been by his side most of the day watching and holding him. Today the Hospice nurses came and found that he had a very high heart rate. They gave us a suction machine to help with the discharge in his mouth, if he has another seizure, and gave him medicine to lower the heart rate and to help him if he is having a seizure. They were so very kind and gentle with him.
We are planning to have Christmas for him this Friday. Kelvin is so cute, every time I called attention to him I would say "Kelvin you have to behave don't forget that God is watching" he would respond yes mommy and so is Santa. All year he reminds me that Santa is watching and that he will be on his good list. So all I want for him is to have Christmas. Billy our friend is going to help with this be as magical as possible for my little angel. He will arrange for Santa to come to visit too!! I told him today "Honey I want to tell you that Christmas is here! We are going to decorate and have our Christmas on Friday" He smiled, I could see the joy in his eyes. Tomorrow we are suppose to have his hero visit, Spiderman! I can see that he is excited and we are hoping that he will be responsive to enjoy his visit!
We are praying that Kelvin remains happy and comfortable and that he can be awake and alert to see all the surprises we have for him! We are also praying that God will allow him to stay with us a little while longer so we can hold him and kiss him. I feel so much pain. I just don't know how I will be able to go on without him. I know I have my little Zacky but I just want to be selfish and have both of my little boys with me! God please grant us a miracle, cure my little angel. We beg you!
With a tearful heart,
Mom & DAD
A Bleeding Heart
Last night at about 2:00am Kelvin began to gasp for air, his eyes were just wide open but in less than 30 seconds and he was all right, I was scared but he began to talk to me and tell me he was all right. At approx 4:00am it happened again lasting more than 10 minutes, we thought for sure he was leaving us. We held him and assured him he was going to be in God's hands and that we were happy to know that he would be taken care of. I called the hospice nurse who came and checked him. He remained stiff and wide eyed and tears fell down his cheeks. I kept telling him not to cry or be afraid but I could not help but cry myself. The nurse told us that it was a seizure and that he might come out of it and feel better. Frank and I are so afraid of saying goodbye! At that moment that when we thought that God was taking our angel we found courage to do nothing but assure him and hold him. We could not stop kissing him and holding him tight praying for a miracle.
The limo arrived at 7:30am and I told the driver what had happened, he was so amazing he said that he would wait outside all day if he had to, just to see if Kelvin would feel well enough to take a ride. At about 10:00 am he reached over to me to hold my hand. My bleeding heart was filled of joy, I felt as though I was slowly dyeing inside watching him slowly slip away so when he touched me he was reassuring me he was all right. We told him about the limo and after we gave him some morphine to help him with his breathing, Frank scooped him up, wrapped him in a blanket and we ran to the limo. We had to do this for him! He deserves it! Unfortunately he is so tired from the seizures that he was not up to going to Disneyland. I won't give up! I will do my best to get him there! We took about a 2 hour drive he did not want to get off so the driver kept driving. Finally Kelvin said he was done and wanted to go home. We are home now surrounded with friends and family. He is doing much better but we did notice that he slurred, it does not matter. God has given me one more day with my baby and that's all that matters to us now! We will treasure every moment we have with him and not waste any time! We know that he feels loved and safe and that's exactly how we want him to enter Gods Kingdom!
With a bleeding heart,
MOM & DAD
The limo arrived at 7:30am and I told the driver what had happened, he was so amazing he said that he would wait outside all day if he had to, just to see if Kelvin would feel well enough to take a ride. At about 10:00 am he reached over to me to hold my hand. My bleeding heart was filled of joy, I felt as though I was slowly dyeing inside watching him slowly slip away so when he touched me he was reassuring me he was all right. We told him about the limo and after we gave him some morphine to help him with his breathing, Frank scooped him up, wrapped him in a blanket and we ran to the limo. We had to do this for him! He deserves it! Unfortunately he is so tired from the seizures that he was not up to going to Disneyland. I won't give up! I will do my best to get him there! We took about a 2 hour drive he did not want to get off so the driver kept driving. Finally Kelvin said he was done and wanted to go home. We are home now surrounded with friends and family. He is doing much better but we did notice that he slurred, it does not matter. God has given me one more day with my baby and that's all that matters to us now! We will treasure every moment we have with him and not waste any time! We know that he feels loved and safe and that's exactly how we want him to enter Gods Kingdom!
With a bleeding heart,
MOM & DAD
Wednesday, October 04, 2006
The New Golden Girls-Through The Years
Tuesday, October 03, 2006
Going To Disneyland Tomorrow! -Kelvin's Family
Last night Kelvin woke up and Frank and I talked to him. We told him that we knew he was tired and that it was okay if he did not want to fight anymore. We told him that God will take care of him and of us that we will one day be together forever and not to worry about us that we would be OK. We also told him not to be scared and that Heaven is a beautiful place filled with wonderful magical things and that there were lots of angels he could play with. My little one will never be lonely, he will always have someone to play with. This makes us happy knowing that the suffering will soon stop and that he will again laugh out loud, play and run like he use to! It is hard to imagine being without him but we must not be selfish and think of him only him! He has been through enough and needs to stop hurting. He fell asleep and at about midnight he woke up excited and smiling. I talked to him and he told me "Mommy, mommy I saw heaven" I felt so happy when he said this knowing that God was watching over him and showed him what lies ahead for him. He is not afraid now and he is so happy to one day be in the presence of God. Frank and I are hurting but are so happy that our baby will go from our arms into God's arms. .
We have decided to take him to Disneyland tomorrow. Our good friend, Billy has set it up so that "A Big Car" a limo, what Kelvin had asked him for one day to pick him up and take him to Disneyland. He told Billy a few weeks ago that he wanted him to come to his "Cancer Go Away Party" at Chucky Cheese and that he wanted a Big Car, a limo to pick him up. Billy promised him that he would do this for him. I am hoping that God will allow him to enjoy this wonderful day that has been planned for him. His best friend and best cousin will join him. They have been with him through this difficult time and they should be with him for this so very special occasion. We pray that this trip will make him laugh out loud one more time and we hope we will be able to see him walk once again for just a little while. So much has happened in so little time and as long as our little angel is happy and without pain is all that matters to us now even if we only have him for just a little while.
We will all be praying for our beautiful child now, that he is happy and comfortable and that he will not suffer any pain or sadness. We are still praying for a miracle but if God needs him now then we just pray that he will go in peace. Amen
With our hearts filled with unselfish love,
Mom & DAD
We have decided to take him to Disneyland tomorrow. Our good friend, Billy has set it up so that "A Big Car" a limo, what Kelvin had asked him for one day to pick him up and take him to Disneyland. He told Billy a few weeks ago that he wanted him to come to his "Cancer Go Away Party" at Chucky Cheese and that he wanted a Big Car, a limo to pick him up. Billy promised him that he would do this for him. I am hoping that God will allow him to enjoy this wonderful day that has been planned for him. His best friend and best cousin will join him. They have been with him through this difficult time and they should be with him for this so very special occasion. We pray that this trip will make him laugh out loud one more time and we hope we will be able to see him walk once again for just a little while. So much has happened in so little time and as long as our little angel is happy and without pain is all that matters to us now even if we only have him for just a little while.
We will all be praying for our beautiful child now, that he is happy and comfortable and that he will not suffer any pain or sadness. We are still praying for a miracle but if God needs him now then we just pray that he will go in peace. Amen
With our hearts filled with unselfish love,
Mom & DAD
More Bad News-Kelvin's Family
Today we spoke to Kelvin's case manager nurse who advised us not to take Kelvin on the Disney Cruise. She said that the pressure on the plane could cause more damage. I am so heart broken to know that we will not be able to full fill Kelvin's dyeing wish. I asked the nurse about how long we had left with Kelvin and she said that weeks at the most that a month in a half the longest if that. It all seems like a horrible nightmare! How could this be happening to our little family? I keep asking myself what I did to deserve such sadness in our lives. I talked to Kelvin today and told him that he has cancer in his brain again. He seemed to understand, he said that he wanted to keep fighting. I asked him if he wanted more medicine but he did not respond. I also told him that he is being taken care of by God, that God was going to take care of him and he was his doctor now. God has always been by your side and now you are in his arms and he is holding you. I asked him if he was happy to be home and he said yes so I am glad that being home is making him happy. Kelvin's illness has been progressing, he has barely spoken and sleeps most of the day. He had a low grade fever today and well I started to panic. I called the hospital and they said he could have an infection. We pray that he won't get a fever again. Today he had more visitors, he seemed a little responsive but then continued to just sleep. As he laid on the couch and I sat by his side on the floor I could hear everyone talking and laughing amongst themselves and realized no matter what happened people would continue to live while others died. It is so hard to imagine life without Kelvin and I just don't want to. Today the dreaded subject came up, "Where would we lay him to rest?" I don't even want to think about this in fear that it would become a reality. I want him close but can't imagine living here in Palmdale, in this house if he is not hear to enjoy it. We actually moved for him, he wanted a big house and this was the only place we could afford. Why stay here if he is not? It just does make sense. All the memories, we finally completed the back yard so the kids could play and the sad thing is that Kelvin has not been able to enjoy it. I pray that he gets the strength to go out and play. As I write this I pray that I will wake up from this horrible nightmare. We are hoping that Kelvin is well enough to go to Disneyland. He says he wants to go and we pray that he has the strength. We are planning to take him Thursday or Friday we are just waiting to see if he gets better. We are having people pray for my little Kelvin, tomorrow people from two churches will come to pray over my baby. I believe that if God wants he will grant us a miracle and this is what we are praying for A MIRACLE! I Just ask God to please allow my son to be happy and not suffer. He has to be able to enjoy the last days of his life. I want to hear him laugh and I want to see him run and ride his bike. We were suppose to buy him a ATV this weekend but he does not even want to go outside. I knew he was sick but I never thought he would get so sick so fast. I remembered praying that if God was going to take him that he would take him fast so that he would not suffer. I only wish we new months in advance so that Kelvin would have fulfilled his wish. When ever Kelvin was in pain, and whenever he cried and was scared he would clutch a postcard from the Disney cruise and say that thinking about going made him feel better. I remember feeling so sad one day and as I sat by the bed and cried he handed me the postcard and said "It's okay mommy, just hold on to this card and think you are on the cruise and you will feel better". I laughed and kissed him and this made me feel better. I don't want to stop kissing him and hugging him. As I sit next to him I feel his little head on my chest and kiss it, I want to hold him hard and never let go. I just don't want to say goodbye! I spoke to a friend today and I told her that no mother should have to endure such pain!
I just can't give up! I want you all not to give up! Kelvin has to live, he has so much to live for. He is just a child and he can do Gods work! So please lets pray that God decides to keep him hear so that he can teach us all about God and life! If we all join in this mighty prayer maybe God will listen! He has to listen!
Praying for more time,
MOM & DAD
P.S. We were referred to Hospice today, I never thought this could happen to my little angel, my little soldier who won't stop fighting!
I just can't give up! I want you all not to give up! Kelvin has to live, he has so much to live for. He is just a child and he can do Gods work! So please lets pray that God decides to keep him hear so that he can teach us all about God and life! If we all join in this mighty prayer maybe God will listen! He has to listen!
Praying for more time,
MOM & DAD
P.S. We were referred to Hospice today, I never thought this could happen to my little angel, my little soldier who won't stop fighting!
Monday, October 02, 2006
Confused-Kelvin's Parents
Today we had allot of family come and visit Kelvin. He stayed in bed and was very quiet. He hardly spoke, finally at about 11:00pm he started to talk. We were so happy to see him act a little more normal but when I began to talk to him about his visitors he kept telling me that they did not visit him that he was in the hospital when they came to the house. Kelvin could not remember what he ate or getting any of the gifts. It was pretty scary! I don't know why this happened I am just praying that it is not the progression of the cancer. I hope that with the medicine they gave him for the swelling in his brain will help normalize him.
It was so nice to have so many people visiting Kelvin, I wish that it could have been like this all along but it took Kelvin getting worst for people to realize how sick he really was. I think allot of people took him for granted and now they realize how much they may miss him if he is gone. Now that he is getting these visitors he can't seem to remember. It is so frustrating and so unfair!
I still can't stop crying, it is just so difficult to imagine life without my little angel. I look at him, hold and kiss him, he is so sweet and warm and I just want to hold him and never let go. I can't accept what is happening and I want it to stop, I want our life to be what it was. I have been on the computer looking to see if there is something that will cure him. So much is out there but I don't want to give up! We have sent a man to the moon, cloned animals and still can't seem to find a cure for his horrible decease! People are dyeing everyday, rich,poor, all different races and ages! It is so horrible to think that more money is spent in Iraq in a week than on trying to find a cure in a year! I pray that a cure will be found and it won't be to late for my little angel. This is my wish!
May our wish come true,
MOM & DAD
P.S. Please continue to pray for my little soldier he told me that he won't give up, that he wants to continue fighting.
It was so nice to have so many people visiting Kelvin, I wish that it could have been like this all along but it took Kelvin getting worst for people to realize how sick he really was. I think allot of people took him for granted and now they realize how much they may miss him if he is gone. Now that he is getting these visitors he can't seem to remember. It is so frustrating and so unfair!
I still can't stop crying, it is just so difficult to imagine life without my little angel. I look at him, hold and kiss him, he is so sweet and warm and I just want to hold him and never let go. I can't accept what is happening and I want it to stop, I want our life to be what it was. I have been on the computer looking to see if there is something that will cure him. So much is out there but I don't want to give up! We have sent a man to the moon, cloned animals and still can't seem to find a cure for his horrible decease! People are dyeing everyday, rich,poor, all different races and ages! It is so horrible to think that more money is spent in Iraq in a week than on trying to find a cure in a year! I pray that a cure will be found and it won't be to late for my little angel. This is my wish!
May our wish come true,
MOM & DAD
P.S. Please continue to pray for my little soldier he told me that he won't give up, that he wants to continue fighting.
Sunday, October 01, 2006
We Are Home-More From Kelvin's Parents
As I walked down the hall of 4-West, cancer floor, all I could do was cry. Our journey is finally over. We will not go back, all that can be done has been done. I felt like such a failure. All of the staff was so loving and did all they could to keep me falling apart. Frank has been so strong and has had to endure all this plus my sadness. We drove in silence and as we got closer to home we both could not stand it. We did everything possible not to cry but Frank put the radio on and we both could not hold back the tears there were times that the tears were coming down so fast that it was difficult to see. My heart sank, Frank had broken down. We kept holding each others hand, in silence hoping Kelvin did not notice how devastated we both are. I know that he knows, but the word have not been spoken. I go over what I will say a thousand time but can't seem to find the right words. He is happy to be home but he is still weak. He smiled as we walked in the house as Zacky ran up to greet us, hugging and kissing us. He missed us so very much! Zacky can tell something is not right. He continues to go in and out of Kelvin's room he knows his brother is hurt and keeps saying "Hermanito", my brother. Our little family is so heart broken, we are all falling apart we continue to pray for a miracle. God please hear us, please hear how we suffer for our little angel! We can not live without him, he is our blood he is our life.
I am frantically doing what I can to book our Disney Cruise, the next one is on Oct. 7th which is too soon and the next one is on Oct. 14th which we are pretty sure is right. Unfortunately I can't seem to book it, the website keeps telling me that I need to call. There is another one on Oct 28th but we do not want to wait this long. Tomorrow I will call and hope we can book the Oct 14th one.
I looked up the cancer Kelvin has developed "Leptomeningeal Metastases" the details are grim. All the affects it has are devastating, seizures to loss of hearing and sight. It is just so devastating. Just when I think I am ready I see that there is no way I can ever be ready for what lies ahead. I pray for strength for all of us especially my Kelvin and pray that God will allow him to remain strong long enough to full fill his wish. Please join us in this plea!
May the lord have mercy on us all!
MOM & DAD
I am frantically doing what I can to book our Disney Cruise, the next one is on Oct. 7th which is too soon and the next one is on Oct. 14th which we are pretty sure is right. Unfortunately I can't seem to book it, the website keeps telling me that I need to call. There is another one on Oct 28th but we do not want to wait this long. Tomorrow I will call and hope we can book the Oct 14th one.
I looked up the cancer Kelvin has developed "Leptomeningeal Metastases" the details are grim. All the affects it has are devastating, seizures to loss of hearing and sight. It is just so devastating. Just when I think I am ready I see that there is no way I can ever be ready for what lies ahead. I pray for strength for all of us especially my Kelvin and pray that God will allow him to remain strong long enough to full fill his wish. Please join us in this plea!
May the lord have mercy on us all!
MOM & DAD
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